Routines are so easily set in place aren’t they? I get up – I shower – I head to the hospital. I know the walk there, it’s taken a couple of days, but I have begun to take more notice of my surroundings instead of being intent on ‘just getting there’. I notice now what I am walking on, not just down the stairs, but the colour of the carpet, how soft the lino is, to the larger rounded paving bricks outside, how tall the trees are and the noisy parrots that live in them. There is a park over there, and people walking with their knapsacks are all heading somewhere for their own day to begin. My closed in world is widening, it’s lovely to ‘feel’ again.
It’s a blessing being at Ronald McDonald House – nothing else matters. No cooking, no shopping, no house-stuff. Just get yourself up and get going to get to your kid. It really takes the pressure off. All the families here are going through their own traumatic time, we are all different, from the older mothers to the 7ft aboriginal man, to the young parents, some with kids here, some with kids in hospital, but all the same, there’s that level of understanding between us.
Josh greeted me with a smile and a laugh this morning. Albeit a pathetic pained laugh, but it is uplifting to hear. He’s much more awake and is not agitated at all today. I was very happy to see him smile for the first time in forever.
I took a video of him, but can’t work out how to upoad a MP4 here and I only get 15 minutes online for my 2 bucks. It was cute, with a little laugh, you’ll just have to imagine you can hear him.
Our Doctor is happy with Joshua’s recovery and is responding normally as expected. He never said it would be easy, but it will end. He explained how he controversially avoided full pelvic surgery, which in his opinion, is not needed for Josh if this works. I feel confident that he has Joshua’s best interest at heart.
He still looks pale,(he’s always pale though) his haemoglobin is low (was 144, now 74) but we will hold of doing a transfusion for the moment, as there are other problems associated with that and Dr is certain Josh will make it up himself soon enough. I don’t even know how low that low is, but I am sure they won’t put him at risk & they are doing their very best to help him back to normality. His temp is fine now; Dr also explained that it’s not unusual for kids to throw temps after this kind of surgery due to the haematoma on the hips.
The physiotherapist has been visiting and trying to get his lungs filling better, as well as moving him to a more upright position for his lungs and his bowels. It’s really nice to have him sitting up. She wore Easter Bunny ears today and he thought that was funny. I learned how to do physio on his legs… and he won’t break. I worry as he looks so fragile, but she assures me with those steel pins I won’t be breaking him in a hurry. He tolerates being rolled better today too.
His iv anaesthetic was taken down today and he is on oral meds, 2 more lines to take down and he’ll be free. He likes having his favourite hand back, although it’s been hitting him lately. Naughty hand!
Dr said Josh would be able to be out of here by early next week, and is happy for us to be discharged to Geraldton hospital perhaps even earlier, depending on how he goes.
He’s changed rooms again… this time he’s in a quiet back room; hopefully Andrew gets more sleep there.